My Apologies for no blog

I have not written a blog in almost 2 weeks.  It has been a very difficult 2 weeks where I have felt like I was literally drowning in my grief, my anxiety and my responsibilities.  I also came down with very painful mouth ulcers (blisters) that are probably a result of the stress I am under.  Thankfully they are mostly healed up now and although I still feel I am struggling in violent waves that continue to crash over me, my head is above water for the moment.  I am hoping to write a couple of blogs in the next few days.

I Give Myself Permission…

I am what you might call a driven person.  I have to be doing something, I have to be achieving something,  I have to see progress, I have to see results.  I am a person who lives with lists of to do items.  My world is formless, and empty unless I make a list every morning.  Then my day has substance and boundaries around it that I can see and understand.  I don’t always have to cross everything off the list – I just have to have the list.  But…. I am driven to get as much off the list as I can.

I feel like I can’t waste a moment of time.  Watching TV ( I mostly watch the news) has to be watched while doing something like flipping through a magazine, or updating my budget, or writing another list.  I love reading but I have a terrible time reading fiction.  I can’t allow myself the luxury of just reading for the joy of it.  I mostly read non-fiction where I will learn something.  Then I feel I am being productive.  I am working on this.

I worked in the school system for 33 years as an Educational assistant with special needs kids.  I worked all day, then often did things in the evenings, on weekends and holidays.  I go overboard with almost everything.  I love it this way,  I feel productive, worthwhile and accomplished.  When I retired 2 years ago, the first year was hell.  Not having the routine of going to work every day was so disruptive for me and foreign to my way of life for so long.  I had lost a big part of myself.  My saving grace was getting a job at the public library and at a Teacher’s Resource Centre.  I also  took over the library at my church.  These things kept me busy and feeling like I was still productive.  I also delved into doing projects around the house.  Anything to keep me going.

Of course, looking after my Mom was a huge part of my daily routine.  As she started failing more and more,  my stress level went higher and higher.  The physical duties of looking after her were not as overwhelming as the emotional stress of dealing with the fact she was failing and could leave me at any time.  I got more and more exhausted.  I tried to ignore the exhaustion and keep up a rigorous schedule.  I became more and more anxious and depressed and the exhaustion deepened.  I fought back with just upping the ante.  More jobs to do, more tasks to carry out.  Stay up late, get up early.

About a month ago,  I had an issue where I spiraled downward emotionally.  I withdrew from everyone, locked the front door, closed the curtains and did not answer the phone.  I basically curled up in my rocker-recliner with a blanket over me and hid from the world.  This went on for over a week when I finally surfaced and felt I might just be able to face the world again.  The curious thing though that happened was that even though I was back being with people and engaging in the world around me again I still found myself curled up in my easy chair a lot of the time.  When I wasn’t directly involved in looking after Mom or having to go out to work or run errands, I would retreat to my chair with a cup of tea and just rest.  At first I thought I was maybe getting depressed and I was worried but then I realized that I was actually feeling better.  I wasn’t zooming around at top speed and I didn’t seem to be distraught about it.  I was seeking out my chair more and more and relishing the time spent doing nothing.  This was so foreign to me but a relief somehow.

I know that I am totally exhausted both physically and emotionally.  I know I am in a critical state of overload.   I know that if I am to continue to care for Mom something drastic has to happen or else I will not make it.  Yesterday while talking to a friend about my resting so much in my chair I blurted out words I never thought I would hear myself saying.  I said to my friend, ” I am giving myself permission to do nothing!”  I think I shocked myself as much as I shocked her.  I have never voluntarily given myself permission to do nothing without dealing with the fallout of anxiety and self- hatred.  But when you are at the end of your rope,  your world view can change drastically in order to survive.  And for me to survive looking after Mom, I need to do a lot of NOTHING.  It’s very freeing to give yourself permission to do something even if that something is nothing!

I feel a bit like an earthquake just hit my world view.  Things are shaken up for sure.  This is new territory for me and certainly not completely comfortable yet.  But I want desperately to be able to continue to look after Mom in a healthy way  so as the dust settles, I am going to continue to settle into my easy chair or my hammock chair, sip on a cup of tea, maybe flip through a magazine or enjoy one of my cats on my lap and I am just going to rest.  And maybe, just maybe I can get through this time in my life without disintegrating or collapsing.

I challenge you to say those words, ” I give myself permission…..” and fill in the blank with something in your own life.  It will be a challenge but I believe it will be a positive experience for you, a ticket to move ahead in your life and leave negative patterns behind.  What could be better than that?

I look at my cats and see how they live without a care ( except when their next meal is coming and are they going to get their treats today?)  I want some of that serenity and bliss I see as they snooze in a patch of afternoon sunlight.  I want that ability to give myself completely over to relaxation and rest.  I wanna be a cat, but since I’m not – I will take a lesson from them and do my best to find a way to enter into a rest that will keep me going on this difficult and exhausting  journey with Mom.

Joy Comes in the Mourning

I’d like to introduce you to my little “JOYBOY”.   His name is Gus Gus.  I adopted him a year ago this month shortly after I lost my beloved Zacky who I had for 15 years.  As you might suspect, I am a cat person – in and out, through and through – period.  I could not live without a kitty in my life.  I have 2 cats – Gus Gus who is pictured here and my beloved gentle soul Oreo who is about 7 years old.  I will tell you more about him at a later date.

For this blog I would like to tell you more about Gus Gus because I feel he has a very special purpose in the journey I am going through right now.  Gus Gus looks very docile in this picture but in real life he is full of boundless energy and doubly full of mischief!  My days are forever filled with his antics and adventures.  He is so curious that nothing gets by him without a full inspection and often naughty consequence.  He digs in my flower pots, not only digs but dumps them completely out and then proceeds to madly spread the dirt all around.  He made a nest in the Christmas tree.  He takes flying leaps across my table and counters and everything goes flying in his path including an antique dish,  and numerous other breakable objects.  He tries to eat my Mom’s flowers and loves to rummage through any array of items he can find.  He even helped me paint.  I have his colourful footyprints on my black computer chair to prove it.

By now I think you get the picture of what this little guy is like.  But there is something else about this little guy that is not visible to the human eye but is only visible to my human heart.  For some uncanny reason,  Gus Gus makes me laugh.  And I don’t just mean when he is doing something funny.  He makes me laugh when he is sleeping, when he is being naughty, and even when I just think of him.  JOY inside of me just  bubbles up like my favourite Perrier water.   He douses my grieving soul with pure JOY.  It is inexplicable in human or cat terms.  I have never had a cat or any animal that has had this effect on me.  Sometimes I am telling Mom something about what he has done and I am doubled over in fits of laughter till tears run down my face.   I can be on the bus going somewhere and I think of him and  I start to chuckle.  I can be having a truly horrible day and Gus Gus will just make me start to laugh.

Even when I don’t want to laugh.  Most days I don’t feel like laughing.  I am exhausted, overwhelmed, depressed, highly anxious, full of fear, full of uncertainty and I just want release.  I love my Mom so dearly, but it is so hard.  This care taking job is so hard.

I have always related to animals better than I have related to people and I suspect that has something to do with my autism.  My cats are my LIFE.  But what has happened this past year with Gus Gus just confounds me.  It is something beyond the norm, even beyond my loving my cats.  I believe Gus Gus is a gift to me to help me through this very difficult time.  The joy he give me is a gift that lifts me above the despair I often feel as I look after Mom.  I believe that without him in my life this past year, I may not have made it.

There is a verse in the bible that says that “Weeping may endure for the night but joy comes in the morning”  Psalm 30:5.   I know we shouldn’t change God’s word but I am going to take a bit of  liberty and do a spelling change.  I am going to say, “Weeping may endure for the night but JOY comes in the MOURNING.  I believe God has given me my little Gus Gus as my JOY to help me through the mourning.  He is my JOY in the mourning and grief I feel as I look after Mom.  You can’t put God in a box.  He is a creative God who knows what each of us individually needs and He knows I love my cats.  He knows I need JOY.  And he gave me both in a very unique way.  His own special touch!  (speaking of putting God in a box – I have a card and on the front a man is talking to a cat and looking at the litter box.  He says to the cat, ” And don’t ever think outside the box!!”

Another thing about Gus Gus that makes me know he is a special gift from God has to do with hearts.   My cat Zacky who died had a beautiful heart in his fur.  I was worried after he died that I wouldn’t know how to  pick the right kitty for me.  I’m not sure you’re supposed to dictate to God your demands but I told God that if a kitty had a heart on him I would know it was the right kitty for me.  I saw Gus Gus on the Humane Society website.  I went to see him at a local pet store where he was.  I was drawn to him but as I  tried to inconspicuously  find a heart on him I could find none.  What to do??  The lady at the store kept saying to me, “Just try him out, you can bring him back.”  So with my own heart thumping in my chest, I brought him home.  Well, in the next week I found not 1 heart on him, not 2 but 5 hearts on his little furry body.  He is definitely my cat, my JOYBOY,  my heart throb, and my lifesaver.  If you could see me right now I am smiling from ear to ear at the thoughts of this little guy.

One thing I have learned.  There can definitely be JOY in the mourning.  I am experiencing it firsthand everyday through one furry little crazy cat called Gus Gus.

Grief – the Makings of a Horrific Loss or Lion-like Strength

As this website title suggests, I will be writing frequently on my experiences as a caretaker for my elderly Mom and the grieving process I am going through.

BUT what exactly is GRIEF??  To put it simply, it is our reaction to any loss we experience in our life.  You don’t only experience grief when someone dies.  Grief can be felt in many life events.  Any major change like a move to a new house or changing jobs or changing caregivers or changing schools can leave you lost and shocked.  Leaving elementary school to start high school or to start out on your own as an adult can cause grief at what you feel you may be losing like favourite teachers, friends etc.  Losing a beloved pet, a friend moving away, your favourite possession broken or lost, a divorce, a loss of good health, a loss of something that helped define who you are such as retiring from a job that was a large part of your identity, a loss of something that gave you great pleasure like a hobby or a favourite outing can bring on grieving feelings.  All of these things and many more can cause us to mourn or grieve and can have a huge impact on our well-being.

But like many things, grieving is a process and over time if we have the right guidance and support and attitude, that process can take us to new positive places in our lives.  In my life, my faith helps significantly in my grieving process.  For you it may be something else.  Whatever our journey, grieving can make us stronger not weaker.  It doesn’t have to decimate our lives although I won’t deny it can be very painful.

I am hoping this blog will show you that despite my struggle with grief coming at me from a number of different sources, complicated by having autism and all that entails, my resolve is to emerge stronger and more intact than I have ever been.  The picture above captures my feelings exactly.  I may be an ordinary house cat but inside of me is a  roaring lion with a strength I did not know I possess.  Harnessing that strength through the grieving process is my goal.  There is a verse in the bible that is my daily mantra.  It goes,  ” My grace is sufficient for you, for my power is made perfect in weakness” spoken by Jesus Christ found in 2 Corinthians 12:9.

I think I speak for those of us with autism that hardship is certainly not foreign to us.  We live difficult challenges every day of our lives.  It’s what we do with those challenges and our grief that makes us the unique and special people we are.